Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination

Postier, Andrea C. - Wolfe, Joanne - Hauser, Joshua - Remke, Stacy S. - Baker, Justin N. - Kolste, Alison - Dussel, Verónica - Bernadá, Mercedes - Widger, Kimberley - Rapoport, Adam - Drake, Ross - Chong, Poh Heng - Friedrichsdorf, Stefan J.

Resumen:

Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.

Detalles Bibliográficos
2022
Pediatric
Curriculum
Education
Palliative care
Survey
Training
PEDIATRÍA
NIÑO
CUIDADOS PALIATIVOS
MEDICINA PALIATIVA
ENCUESTAS Y CUESTIONARIOS
EDUCACIÓN MÉDICA
CAPACITACIÓN PROFESIONAL
Inglés
Universidad de la República
COLIBRI
https://hdl.handle.net/20.500.12008/55178
Acceso abierto
Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0)
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author Postier, Andrea C.
author2 Wolfe, Joanne
Hauser, Joshua
Remke, Stacy S.
Baker, Justin N.
Kolste, Alison
Dussel, Verónica
Bernadá, Mercedes
Widger, Kimberley
Rapoport, Adam
Drake, Ross
Chong, Poh Heng
Friedrichsdorf, Stefan J.
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author_facet Postier, Andrea C.
Wolfe, Joanne
Hauser, Joshua
Remke, Stacy S.
Baker, Justin N.
Kolste, Alison
Dussel, Verónica
Bernadá, Mercedes
Widger, Kimberley
Rapoport, Adam
Drake, Ross
Chong, Poh Heng
Friedrichsdorf, Stefan J.
author_role author
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dc.contributor.filiacion.none.fl_str_mv Postier Andrea C., University of California San Francisco (E.E.U.U.). Department of Pediatrics
Wolfe Joanne, Boston Children's Hospital, Boston (E.E.U.U.). Dana-Farber Cancer Institute
Hauser Joshua, Jesse Brown VA Medical Center (E.E.U.U.). Northwestern Feinberg School of Medicine. Boston Children's Hospital, Boston
Remke Stacy S., University of Minnesota (E.E.U.U.). School of Social Work
Baker Justin N., St. Jude Children's Research Hospital (E.E.U.U.). Division of Quality of Life and Palliative Care
Kolste Alison, Children's Hospitals and Clinics of Minnesota (E.E.U.U.)
Dussel Verónica, Instituto de Efectividad Clínica y Sanitaria (Argentina)
Bernadá Mercedes, Universidad de la República (Uruguay). Facultad de Medicina
Widger Kimberley, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children
Rapoport Adam, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children and Departments of Paediatrics and Family & Community Medicine
Drake Ross, Starship Children's Health (Australia). Palliative Care and Pain Medicine
Chong Poh Heng, HCA Hospice Care (Singapur)
Friedrichsdorf Stefan J., University of California San Francisco (E.E.U.U.). Department of Pediatrics
dc.creator.none.fl_str_mv Postier, Andrea C.
Wolfe, Joanne
Hauser, Joshua
Remke, Stacy S.
Baker, Justin N.
Kolste, Alison
Dussel, Verónica
Bernadá, Mercedes
Widger, Kimberley
Rapoport, Adam
Drake, Ross
Chong, Poh Heng
Friedrichsdorf, Stefan J.
dc.date.accessioned.none.fl_str_mv 2026-05-25T18:39:49Z
dc.date.available.none.fl_str_mv 2026-05-25T18:39:49Z
dc.date.issued.none.fl_str_mv 2022
dc.description.abstract.none.fl_txt_mv Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.
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dc.identifier.citation.es.fl_str_mv Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358
dc.identifier.doi.none.fl_str_mv 10.1016/j.jpainsymman.2021.11.017
dc.identifier.eissn.none.fl_str_mv 1873-6513
dc.identifier.uri.none.fl_str_mv https://hdl.handle.net/20.500.12008/55178
dc.language.iso.none.fl_str_mv en
eng
dc.publisher.es.fl_str_mv Elsevier
dc.relation.none.fl_str_mv Journal of Pain and Symptom Management. 2022;63(3):349-358
dc.rights.license.none.fl_str_mv Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0)
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
dc.source.none.fl_str_mv reponame:COLIBRI
instname:Universidad de la República
instacron:Universidad de la República
dc.subject.es.fl_str_mv Pediatric
Curriculum
Education
Palliative care
Survey
Training
dc.subject.other.es.fl_str_mv PEDIATRÍA
NIÑO
CUIDADOS PALIATIVOS
MEDICINA PALIATIVA
ENCUESTAS Y CUESTIONARIOS
EDUCACIÓN MÉDICA
CAPACITACIÓN PROFESIONAL
dc.title.none.fl_str_mv Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
dc.type.es.fl_str_mv Artículo
dc.type.none.fl_str_mv info:eu-repo/semantics/article
dc.type.version.none.fl_str_mv info:eu-repo/semantics/publishedVersion
description Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.
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identifier_str_mv Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358
10.1016/j.jpainsymman.2021.11.017
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rights_invalid_str_mv Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0)
spelling Postier Andrea C., University of California San Francisco (E.E.U.U.). Department of PediatricsWolfe Joanne, Boston Children's Hospital, Boston (E.E.U.U.). Dana-Farber Cancer InstituteHauser Joshua, Jesse Brown VA Medical Center (E.E.U.U.). Northwestern Feinberg School of Medicine. Boston Children's Hospital, BostonRemke Stacy S., University of Minnesota (E.E.U.U.). School of Social WorkBaker Justin N., St. Jude Children's Research Hospital (E.E.U.U.). Division of Quality of Life and Palliative CareKolste Alison, Children's Hospitals and Clinics of Minnesota (E.E.U.U.)Dussel Verónica, Instituto de Efectividad Clínica y Sanitaria (Argentina)Bernadá Mercedes, Universidad de la República (Uruguay). Facultad de MedicinaWidger Kimberley, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick ChildrenRapoport Adam, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children and Departments of Paediatrics and Family & Community MedicineDrake Ross, Starship Children's Health (Australia). Palliative Care and Pain MedicineChong Poh Heng, HCA Hospice Care (Singapur)Friedrichsdorf Stefan J., University of California San Francisco (E.E.U.U.). Department of Pediatrics2026-05-25T18:39:49Z2026-05-25T18:39:49Z2022Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358https://hdl.handle.net/20.500.12008/5517810.1016/j.jpainsymman.2021.11.0171873-6513Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.Submitted by Almiñana María Cecilia (marialminana@gmail.com) on 2026-05-22T18:07:39Z No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5)Approved for entry into archive by Almiñana María Cecilia (marialminana@gmail.com) on 2026-05-22T18:08:21Z (GMT) No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5)Made available in DSpace by Camps Karina (karina.camps@seciu.edu.uy) on 2026-05-25T18:39:49Z (GMT). No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5) Previous issue date: 202210 p.application/pdfenengElsevierJournal of Pain and Symptom Management. 2022;63(3):349-358Las obras depositadas en el Repositorio se rigen por la Ordenanza de los Derechos de la Propiedad Intelectual de la Universidad de la República.(Res. Nº 91 de C.D.C. de 8/III/1994 – D.O. 7/IV/1994) y por la Ordenanza del Repositorio Abierto de la Universidad de la República (Res. Nº 16 de C.D.C. de 07/10/2014)info:eu-repo/semantics/openAccessLicencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0)PediatricCurriculumEducationPalliative careSurveyTrainingPEDIATRÍANIÑOCUIDADOS PALIATIVOSMEDICINA PALIATIVAENCUESTAS Y CUESTIONARIOSEDUCACIÓN MÉDICACAPACITACIÓN PROFESIONALEducation in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and DisseminationArtículoinfo:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionreponame:COLIBRIinstname:Universidad de la Repúblicainstacron:Universidad de la RepúblicaPostier, Andrea C.Wolfe, JoanneHauser, JoshuaRemke, Stacy S.Baker, Justin N.Kolste, AlisonDussel, VerónicaBernadá, MercedesWidger, KimberleyRapoport, AdamDrake, RossChong, Poh HengFriedrichsdorf, Stefan J.LICENSElicense.txtlicense.txttext/plain; charset=utf-84267http://localhost:8080/xmlui/bitstream/20.500.12008/55178/5/license.txt6429389a7df7277b72b7924fdc7d47a9MD55CC-LICENSElicense_urllicense_urltext/plain; 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- Universidad de la Repúblicafalse
spellingShingle Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
Postier, Andrea C.
Pediatric
Curriculum
Education
Palliative care
Survey
Training
PEDIATRÍA
NIÑO
CUIDADOS PALIATIVOS
MEDICINA PALIATIVA
ENCUESTAS Y CUESTIONARIOS
EDUCACIÓN MÉDICA
CAPACITACIÓN PROFESIONAL
status_str publishedVersion
title Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
title_full Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
title_fullStr Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
title_full_unstemmed Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
title_short Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
title_sort Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
topic Pediatric
Curriculum
Education
Palliative care
Survey
Training
PEDIATRÍA
NIÑO
CUIDADOS PALIATIVOS
MEDICINA PALIATIVA
ENCUESTAS Y CUESTIONARIOS
EDUCACIÓN MÉDICA
CAPACITACIÓN PROFESIONAL
url https://hdl.handle.net/20.500.12008/55178