Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination
Resumen:
Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.
| 2022 | |
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Pediatric Curriculum Education Palliative care Survey Training PEDIATRÍA NIÑO CUIDADOS PALIATIVOS MEDICINA PALIATIVA ENCUESTAS Y CUESTIONARIOS EDUCACIÓN MÉDICA CAPACITACIÓN PROFESIONAL |
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| Inglés | |
| Universidad de la República | |
| COLIBRI | |
| https://hdl.handle.net/20.500.12008/55178 | |
| Acceso abierto | |
| Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0) |
| _version_ | 1877555255869177856 |
|---|---|
| author | Postier, Andrea C. |
| author2 | Wolfe, Joanne Hauser, Joshua Remke, Stacy S. Baker, Justin N. Kolste, Alison Dussel, Verónica Bernadá, Mercedes Widger, Kimberley Rapoport, Adam Drake, Ross Chong, Poh Heng Friedrichsdorf, Stefan J. |
| author2_role | author author author author author author author author author author author author |
| author_facet | Postier, Andrea C. Wolfe, Joanne Hauser, Joshua Remke, Stacy S. Baker, Justin N. Kolste, Alison Dussel, Verónica Bernadá, Mercedes Widger, Kimberley Rapoport, Adam Drake, Ross Chong, Poh Heng Friedrichsdorf, Stefan J. |
| author_role | author |
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| collection | COLIBRI |
| dc.contributor.filiacion.none.fl_str_mv | Postier Andrea C., University of California San Francisco (E.E.U.U.). Department of Pediatrics Wolfe Joanne, Boston Children's Hospital, Boston (E.E.U.U.). Dana-Farber Cancer Institute Hauser Joshua, Jesse Brown VA Medical Center (E.E.U.U.). Northwestern Feinberg School of Medicine. Boston Children's Hospital, Boston Remke Stacy S., University of Minnesota (E.E.U.U.). School of Social Work Baker Justin N., St. Jude Children's Research Hospital (E.E.U.U.). Division of Quality of Life and Palliative Care Kolste Alison, Children's Hospitals and Clinics of Minnesota (E.E.U.U.) Dussel Verónica, Instituto de Efectividad Clínica y Sanitaria (Argentina) Bernadá Mercedes, Universidad de la República (Uruguay). Facultad de Medicina Widger Kimberley, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children Rapoport Adam, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children and Departments of Paediatrics and Family & Community Medicine Drake Ross, Starship Children's Health (Australia). Palliative Care and Pain Medicine Chong Poh Heng, HCA Hospice Care (Singapur) Friedrichsdorf Stefan J., University of California San Francisco (E.E.U.U.). Department of Pediatrics |
| dc.creator.none.fl_str_mv | Postier, Andrea C. Wolfe, Joanne Hauser, Joshua Remke, Stacy S. Baker, Justin N. Kolste, Alison Dussel, Verónica Bernadá, Mercedes Widger, Kimberley Rapoport, Adam Drake, Ross Chong, Poh Heng Friedrichsdorf, Stefan J. |
| dc.date.accessioned.none.fl_str_mv | 2026-05-25T18:39:49Z |
| dc.date.available.none.fl_str_mv | 2026-05-25T18:39:49Z |
| dc.date.issued.none.fl_str_mv | 2022 |
| dc.description.abstract.none.fl_txt_mv | Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness. |
| dc.format.extent.es.fl_str_mv | 10 p. |
| dc.format.mimetype.es.fl_str_mv | application/pdf |
| dc.identifier.citation.es.fl_str_mv | Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358 |
| dc.identifier.doi.none.fl_str_mv | 10.1016/j.jpainsymman.2021.11.017 |
| dc.identifier.eissn.none.fl_str_mv | 1873-6513 |
| dc.identifier.uri.none.fl_str_mv | https://hdl.handle.net/20.500.12008/55178 |
| dc.language.iso.none.fl_str_mv | en eng |
| dc.publisher.es.fl_str_mv | Elsevier |
| dc.relation.none.fl_str_mv | Journal of Pain and Symptom Management. 2022;63(3):349-358 |
| dc.rights.license.none.fl_str_mv | Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0) |
| dc.rights.none.fl_str_mv | info:eu-repo/semantics/openAccess |
| dc.source.none.fl_str_mv | reponame:COLIBRI instname:Universidad de la República instacron:Universidad de la República |
| dc.subject.es.fl_str_mv | Pediatric Curriculum Education Palliative care Survey Training |
| dc.subject.other.es.fl_str_mv | PEDIATRÍA NIÑO CUIDADOS PALIATIVOS MEDICINA PALIATIVA ENCUESTAS Y CUESTIONARIOS EDUCACIÓN MÉDICA CAPACITACIÓN PROFESIONAL |
| dc.title.none.fl_str_mv | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| dc.type.es.fl_str_mv | Artículo |
| dc.type.none.fl_str_mv | info:eu-repo/semantics/article |
| dc.type.version.none.fl_str_mv | info:eu-repo/semantics/publishedVersion |
| description | Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness. |
| eu_rights_str_mv | openAccess |
| format | article |
| id | COLIBRI_2248e66c78acddd76f7679e29d8f87ef |
| identifier_str_mv | Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358 10.1016/j.jpainsymman.2021.11.017 1873-6513 |
| instacron_str | Universidad de la República |
| institution | Universidad de la República |
| instname_str | Universidad de la República |
| language | eng |
| language_invalid_str_mv | en |
| network_acronym_str | COLIBRI |
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| oai_identifier_str | oai:colibri.udelar.edu.uy:20.500.12008/55178 |
| publishDate | 2022 |
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| repository.mail.fl_str_mv | karina.camps@seciu.edu.uy |
| repository.name.fl_str_mv | COLIBRI - Universidad de la República |
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| rights_invalid_str_mv | Licencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0) |
| spelling | Postier Andrea C., University of California San Francisco (E.E.U.U.). Department of PediatricsWolfe Joanne, Boston Children's Hospital, Boston (E.E.U.U.). Dana-Farber Cancer InstituteHauser Joshua, Jesse Brown VA Medical Center (E.E.U.U.). Northwestern Feinberg School of Medicine. Boston Children's Hospital, BostonRemke Stacy S., University of Minnesota (E.E.U.U.). School of Social WorkBaker Justin N., St. Jude Children's Research Hospital (E.E.U.U.). Division of Quality of Life and Palliative CareKolste Alison, Children's Hospitals and Clinics of Minnesota (E.E.U.U.)Dussel Verónica, Instituto de Efectividad Clínica y Sanitaria (Argentina)Bernadá Mercedes, Universidad de la República (Uruguay). Facultad de MedicinaWidger Kimberley, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick ChildrenRapoport Adam, University of Toronto (Canadá). Paediatric Advanced Care Team. Hospital for Sick Children and Departments of Paediatrics and Family & Community MedicineDrake Ross, Starship Children's Health (Australia). Palliative Care and Pain MedicineChong Poh Heng, HCA Hospice Care (Singapur)Friedrichsdorf Stefan J., University of California San Francisco (E.E.U.U.). Department of Pediatrics2026-05-25T18:39:49Z2026-05-25T18:39:49Z2022Postier A, Wolfe J, Hauser J y otros. Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination. Journal of Pain and Symptom Management [en línea]. 2022;63(3):349-358https://hdl.handle.net/20.500.12008/5517810.1016/j.jpainsymman.2021.11.0171873-6513Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.Submitted by Almiñana María Cecilia (marialminana@gmail.com) on 2026-05-22T18:07:39Z No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5)Approved for entry into archive by Almiñana María Cecilia (marialminana@gmail.com) on 2026-05-22T18:08:21Z (GMT) No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5)Made available in DSpace by Camps Karina (karina.camps@seciu.edu.uy) on 2026-05-25T18:39:49Z (GMT). No. of bitstreams: 2 license_rdf: 27293 bytes, checksum: d62648cf14c1e37917d392ac87012955 (MD5) Education in Palliative and End of Life Care Pediatrics.pdf: 5383885 bytes, checksum: 532c149ed93955c6338c5d709e6146b6 (MD5) Previous issue date: 202210 p.application/pdfenengElsevierJournal of Pain and Symptom Management. 2022;63(3):349-358Las obras depositadas en el Repositorio se rigen por la Ordenanza de los Derechos de la Propiedad Intelectual de la Universidad de la República.(Res. Nº 91 de C.D.C. de 8/III/1994 – D.O. 7/IV/1994) y por la Ordenanza del Repositorio Abierto de la Universidad de la República (Res. Nº 16 de C.D.C. de 07/10/2014)info:eu-repo/semantics/openAccessLicencia Creative Commons Atribución - No Comercial - Sin Derivadas (CC - By-NC-ND 4.0)PediatricCurriculumEducationPalliative careSurveyTrainingPEDIATRÍANIÑOCUIDADOS PALIATIVOSMEDICINA PALIATIVAENCUESTAS Y CUESTIONARIOSEDUCACIÓN MÉDICACAPACITACIÓN PROFESIONALEducation in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and DisseminationArtículoinfo:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionreponame:COLIBRIinstname:Universidad de la Repúblicainstacron:Universidad de la RepúblicaPostier, Andrea C.Wolfe, JoanneHauser, JoshuaRemke, Stacy S.Baker, Justin N.Kolste, AlisonDussel, VerónicaBernadá, MercedesWidger, KimberleyRapoport, AdamDrake, RossChong, Poh HengFriedrichsdorf, Stefan J.LICENSElicense.txtlicense.txttext/plain; charset=utf-84267http://localhost:8080/xmlui/bitstream/20.500.12008/55178/5/license.txt6429389a7df7277b72b7924fdc7d47a9MD55CC-LICENSElicense_urllicense_urltext/plain; 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- Universidad de la Repúblicafalse |
| spellingShingle | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination Postier, Andrea C. Pediatric Curriculum Education Palliative care Survey Training PEDIATRÍA NIÑO CUIDADOS PALIATIVOS MEDICINA PALIATIVA ENCUESTAS Y CUESTIONARIOS EDUCACIÓN MÉDICA CAPACITACIÓN PROFESIONAL |
| status_str | publishedVersion |
| title | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| title_full | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| title_fullStr | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| title_full_unstemmed | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| title_short | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| title_sort | Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination |
| topic | Pediatric Curriculum Education Palliative care Survey Training PEDIATRÍA NIÑO CUIDADOS PALIATIVOS MEDICINA PALIATIVA ENCUESTAS Y CUESTIONARIOS EDUCACIÓN MÉDICA CAPACITACIÓN PROFESIONAL |
| url | https://hdl.handle.net/20.500.12008/55178 |